Showing posts with label BRCA education. Show all posts
Showing posts with label BRCA education. Show all posts

Thursday, February 17, 2011

Fipples Nipples

Sorry...I know you all were hoping for a picture of my foobs..Instead you got this ugly picture of me..
Hellooooo! Yes, I am still alive. I know you all have been wondering where I have been/why I haven't written in so long...Well, the honest truth is that this REALLY crappy thing happens sometimes....And that REALLY crappy thing is called LIFE. Between being a full time mom, working full time as a nurse, being a full time maid/cleaning lady at my home/personal cook, and everything in between, I have just about FREAKED THE fuck out. (To be quite honest.)  Nothing serious has happened,  just a bunch of LIFE, and a few nervous breakdowns and hormonal psychotic moments, multiple times a day... So yea. That's my excuse........

But the good news is that on Monday, I am GETTING NIPPLES!!!!!!!! YAY! This will be the last step to my reconstruction process. (Not counting areola tattoos) There really is light at the end of the tunnel. And the light at the end of that tunnel really resembles nipples. Hehe.   ( . )  ( . )

I am not getting nervous about getting nipples at all, but it's weird and kind of unnerving because I have become so used to seeing myself in the mirror, looking like mastectomy barbie doll. Being a woman, being a nurse, the overanalytical thoughts have begun to float inside my head, and are overtaking my brain lately....Thoughts like-"What if the nipples, or "fipples" (fake nipples) don't look right and it messes EVERYTHING I have had up to this point, up?".....Thoughts like-"What if the bloodflow to the fipples isn't adequate and one of my fipples falls off in the middle of the night and my dogs eat it?"  Thoughts like-"So my fipples are going to be ETERNALLY hard??"...Thoughts like-"What if the fipples deflate/flatten out? What's the point??" No pun intended there....Hehe....Thoughts like-"What if I don't like the fipples? It's not like I can just warm them up and they'll go away....." GAHHHHHH!!!!

But seriously. It's scary. Every fucking step to getting your breasts reconstructed is scary as hell. Yea, they are just boobs, and like I've said before....Boobs don't make you who you are.....But would you want your nipple falling off in the middle of the night? Would you want your husband to gently caress and kiss your nipple one night and then get a mouth full of nipple? This is serious stuff....

But on to the more serious/medical stuff.....Because if I keep freaking about my future fipples falling off, then I am not going to sleep at all tonight. And you probably won't either....And you probably aren't going to look at your own nipples the same way for a while, huh?? 

 My plastic surgeon that performed my surgeries will be doing my nipple reconstructions in her office. She said it will take about an hour, and she will only use local anesthesia. There's no need for general anesthesia because I have no feeling at all on my boobs, due to the fact that they cut them off (I had a double mastectomy...DUH!, and I now have silicone implants...(FYI-if you are new to my blog, you need to go WAY back to my older posts to catch up...Starting in July...) There are places on my foobs that I have some sensation, but over 97.3% of my foobs have absolutely no feeling at all... My doctor said that I won't even require pain medication and can even go shopping afterwards......But then the THOUGHTS enter............

"What if my fipples are bloody for a couple of days? I can't walk around with bloody fipples...that would freak the crap out of people..."

"What if one of the nipples starts falling off and starts taking the skin off my foob with it and I can't feel it? Then my muscle/silicone implant would plop out on the ground randomly...Weird alien shit there."

"What if the doctor accidentally pierces or cuts too deeply into my skin while doing the procedure and ruptures one of my implants????????????

AAAAAAAAGHHHHHHHHHHHHHHHHHH

So anyways..(See I told you I have multiple psychotic/hormonal moodswings on a daily basis...I warned you!) .She will use a "CV flap" method to form the nipples....She won't have to take skin from any other part of my body or anything like that...The skin that she will use to make the nipples is the skin on my breasts......Here is an illustration of it to kind of give you an idea...


I realize this isn't a boob and a nipple, but you get the idea...
 There's a lot of other methods of "making" nipples, I guess it just depends on the surgeon..And by the way, there is an old school method where they take skin from your VUUULLLLVA and use that skin to make a nipple. My opinion-if your doctor wants to do that method to make a nipple, RUN AS FAST AS YOU CAN! And if the surgeon happens to be a man, ask HIM how he would like it if part of his WEEWEE was cut off to make a nipple when there are other, much easier and less painful methods....And then kick him.In the weewee.

I will attempt to take pictures during the procedure because my doctor is just cool like that and lets me do stuff like that, but if not, either way, you know I will be eager to post pictures of my fipples as soon as I can. So stay tuned for Angela's fipples....And remember.......

Go ahead and google "nefarious". I know you want to.

Friday, December 10, 2010

Just Call Me a Softie

I officially have squishy boobs now! YOOHOO! (Or should I say "YOOFOOB!"?)   My exchange surgery this past Tuesday went well, and I am still recovering....Slowly.....The pain is definitely there, and yes, the immediate difference in chest pressure is noticed.In a good way..I can take a deep breath without feeling like my foobs are going to crush a rib or something....It's nice. I was just expecting this surgery to be a little bit easier than it was, but I guess I still can't complain, because lt was ALL my choice to have my boobs whacked off in the first place...


Marking all the imperfections to fix on my foobs bf surgery

I have been wanting to write this blog for the past couple of days since my surgery, but I have just been in a lot of pain due to my plastic surgeon having to do a lot of extra work on my left side...The expander on the left side never settled into the muscle-pocket as evenly as the right side, and always sat higher on my chest....(As you can see in the picture to the right.) You can see where my PS (plastic surgeon) marked on my left foob, where to cut into the muscle more, and where to take off the extra skin.....The right foob was good.....

Oh, and by the way after my mastectomies, the only spot on both of my breasts where my nerves have regenerated and I have ANY feeling at all now, is OF COURSE, on my left foob, right where she cut off that extra skin....So yea...That's why I'm having a lot of pain... Generally, after you have a mastectomy, you don't ever get sensation back into your breasts...Sometimes those nerves can regenerate, and sometimes not...Everyone is different...



Damn! Look at those things! WTF are they??

Anyways....This was still my foobs with the expanders in, before the surgery...Bryan and I were waiting in the little curtained area, waiting for the anesthesia people to come while we took these pictures....My exchange surgery was done at an outpatient surgical suite of the hospital, and took about 3 hours....I was not at all nervous for this surgery, compared to the first surgery. Having had to deal with the daily pain of HUGE expanders in my chest and stuff, I was ready to get rid of those suckers...I was totally not sad to say "goodbye" to these boobs....


It's funny...Bryan and I were talking while I was waiting for the doctors, and I mentioned how weird and ironic it was that I was once again saying goodbye to my breasts....How many women get to say goodbye to their breasts twice? The first time I said goodbye to my breasts, it was much more emotional...They were my god-given breasts.....They were the breasts that were potentially going to kill me....But I still was sad to see them go......On Tuesday, when I said goodbye to the "expander breasts", I had no emotional tie to them, whatsoever....I wasn't sad...I was happy to get rid of them.I know that I have made the right choice to have my breasts removed, I haven't even given cancer a chance to reside in my body, in my breasts....Fuck you, cancer! (I hope.....You'll read why in a minute.)

Well...Anyways....Here are some stupid pictures while we were waiting.....And no....I had no medication at this point to make me goofy.....I'm just weird..... :)





Ready for surgery!


My lovely husband.......


The magical hose into my body.


The "little black box" that has anesthesia drugs in it....


Okay...So finally...After like an hour of waiting, the anesthesiologist came in, and I signed some papers saying that I agreed to the side effects of anesthesia (sore throat, headache, dying, etc), and I told Bryan that I loved him, and then the anesthesia guy gave me a small amount of Versed through my I.V. (The "I don't give a damn" medication) Then they wheeled me back to the operating room...I remember this whole ride....I remember getting into the OR, and telling the anesthesiologist that it smelled like a fireplace and then laughing...They all started laughing at me, and then then said it was the medicine....Then I told them to not mess up on my boobs and they started laughing more, and I went to sleep.....How nice.....
Sweet Dreams, Big foobed Weirdo!
So I woke up a couple of hours later.....My chest was actually not the first thing that was hurting....My head was POUNDING! (Damn side effects from the anesthesia..) The recovery nurse was awesome and was right on top of helping control my pain, so she gave me all the pain meds I needed to control the headache, and once that went away, the pain from the surgery started setting in..especially on that left side..And yes, MUSCLE SPASMS occurred, too! And they hurt, I think worse, than the last surgery. They feel like intense lightning bolts, and this time, they are under the muscles in my armpits....Awful shit, let me tell ya....

I guess while I was in recovery, my doctor had come out and talked to Bryan that she found a lump on my left side, above the tissue expander.....I have felt this lump for about a month or so now, and at my pre-op, I showed it to the doctor, and she assumed it was just an internal stitch that had ripped or something...Well, during the surgery, when she opened me up, she saw the lump, and didn't know what it was...She sent it off for biopsy....Bryan debated about whether or not to tell me......So obviously this has me a little freaked out....You know...Having your breasts cut off, and not having to "think" you have to worry about lumps in your breasts anymore, and then something like this happens?......Shit......I don't know.....We will get the results of the biopsy soon.....


ANYWAYS! We got to go home about 1.5 hours after I was in recovery, and that night was GAWD AWFUL....My doctor gave me vicodin for pain medication, and it did absolutely nothing for my pain....I slept 1 hour that first night after my surgery....As soon as my doctor's office opened that morning, I called and told them that I needed something stronger....We had to wait in Albuquerque for about 6 hours, just so we could pick up the written prescription for Percocet from my doctor, because she was in surgery all day long, and narcotics cannot just be called in by a nurse...(I know! I'm a nurse...You have to have a written prescription)...We live in Carlsbad, which is a 5 hour drive from Albuquerque, and we had to wait that long, just for a prescription....BLAH FUCK POOP SHIT! Whatever...I got it, and it is working much better for my pain....(FYI-A lot of people have asked me about pain medications, I guess since I'm a nurse, and bc of this blog..........Percocet is stronger than Vicodin.....APAP means acetaminophin=tylenol.........And Yes, pain medications can make you itch...They make me itch to the point that I have to take benadryl with them!)

Taken the night after surgery with dressings intact
So here are the pictures you've been waiting for....Pictures of my new, squishy boobs....And no, I will not call them "Fishy boobs" now that they are squishy foobs.....

 *I don't have drains, thank god!
*My doctor said I don't have to wear a bra, and can wear one when I feel comfortable wearing one!
*I can't take tub baths for 2 weeks! (I can take a shower 3 days after surgery, which is today!! Totally looking forward to it, because my hair is so oily, I could fry a chicken with the oil from it!) And yea, I sat in the tub to get my bottom half clean and to shave already...I just didn't get my boobs wet at all...That's why they don't want you to take a tub bath...)
*I don't have any wound care/dressings to change...I just took the dressings off that are on the picture above, 2 days after surgery, and now they have steri-strips on the scars...Those stay on until they fall off on their own.....

So here are my new, silicone filled foobs....I'm a softie now!!!

My new foobies...Steri strips cover the scars...Much more natural, don't you think?




Sunday, November 28, 2010

EXCHANGE surgery!!

So I don't think I have mentioned, but my next surgery is on December 7th.....YAY! I will be having these tissue expanders taken out, and will have silicone implants put in.....It's called "Exchange surgery." And I am NOT NERVOUS at all, to tell you the truth...I am so anxious and so ready to get these damn rocks out of my chest. Seriously. From what I hear, this surgery is a piece of cake compared to the first one, so I have nothing to worry about, or to stress out about...I am so ready for it!!

I cannot wait to have these tissue expanders out...Like I've said before, having tissue expanders is like having two huge rocks sewn up inside of you, and the pain is constant, and crushing, and uncomfortable, and shitty, and it just plain sucks ass.....To have squishy boobs, uh, foobs, again.....AWWWW.....To be able to take a deep breath again without my muscles spasming, or without a crushing feeling on my chest.....AWWWW.....To be able to sneeze in peace again without breaking a rib...AWWWWW....I am so ready. 

Oh....And the reason I've been having such pain lately is because, apparently, I ripped my internal stitches, around the Alloderm or something around the expanders....I guess after my first surgery, I went back to doing "normal" stuff too soon....I went back to work 2 weeks after....I was cleaning my pool, picking up dog shit, doing wound care/wound vacs at work (I'm an RN), and vacuuming waaaay too soon....I guess they have those restrictions for a reason.....My doctor gave me STRICT instructions to NOT DO ANYTHING for 2 weeks after this upcoming surgery.....I sure hope I can follow those rules....But it's kind of hard when you have a 4 year old, a 6 year old, and then a husband who doesn't really help out that much....Harsh, but true....

So yea......I'm ready to exchange out my foobs....Oh....And get this.....I am supposed to start my period on the day I have surgery.....Wow...Wonderful, huh? 

Monday, October 18, 2010

The Age Old Question

The time has come in this long and dreadful journey of Foobage, where I now get to decide between silicone and saline....Implants that is...In about a month or so, I will be having my "exchange surgery", in which these dumb ass, mo-fo, uncomfortable shit bag, tissue expanders will be taken out of my foobs, and then replaced with squishy (AWWWW!) implants.....And I cannot wait for this surgery...Seriously. I have dealt with these rocks-for-boobs for 3 months now, and have dealt with daily pain and I am SO done with it. I am ready to have foobs that won't break a rib when I sneeze..(And for the record, yeah...It happened last week..I sneezed and I'm pretty sure I cracked a rib or something, due to these expanders, NOT allowing my lungs to expand during my big sneeze, and I guess the severe crushing pressure broke a rib....) Lovely, huh?

So like I said, I now have to seriously think about my choice of what type of filling I want for my boobs....Silicone or saline implants..?? (God, I sound like I am a jelly filled donut or some shit.) I have pretty much already made up my mind, but I have come up with  pros and cons, etc....

First of all, I wanted to know exactly what silicone was......Well, I know that it is not something that is natural...It's made up of chemicals...Our bodies do not normally have silicone in them, and it is a foreign alien object, and once introduced into the body, can sometimes be rejected by it..The way I see it, the foods we eat are loaded with all kinds of chemicals, and some even have silicone in them such as:
-Pizza Hut's Cheese that they use on Pizza!! (That's the only one I could find..I tried to find more, but couldn't..Sorry!!) Do our bodies reject those foods because of the chemicals??I've never eaten at Pizza Hut, and then thrown up randomly, due to silicone poisoning... NO....So there...

The implant that is in front is silicone, and the one in the back is saline...Decisions, decisions..

But as far as other chemicals, think about all of the chemicals we put in our bodies on a daily basis, think about all of the makeup that we put on our skin, that is made up of chemicals and funky shit....Lotions, shampoos, oils-now all of that stuff DOES contain silicone....Not to mention lubes for "enjoyment"...And f.y.i.-water based lubes are way better and less irritating for the hoohah, than silicone based...Just in case you wanted some free advice from a nurse..  :)  Bandages, those stupid little silly bands that our kids are wearing, cookware, some types of grease, and a lot of other crap are made up of silicone...I just don't feel like researching all the stuff to tell you the truth....That's all the stuff I found in a short amount of time... :)

Now as far as what saline is....It's water with some salt in it....Normal saline...It's an isotonic solution which means it is a perfect balance of H2O (water) and Na+ (Salt)....  Sorry..I'm getting back into my nursing shit...I'll stop...But that's basically what it is...Our bodies are basically made up of (approximately) 70% of water...That's why most people choose to go with saline implants..I guess because they feel that it is safer...If one ruptures, your body is just introduced to more water, and eventually absorbs it...It's non-toxic, in other words..We, human beings, like to use stuff that is "non-toxic"....Safe enough, I guess...


Silicone or saline implants-no matter which one, comes in a silicone outer shell...So there's just no way around it...You are gonna have silicone in those boobs one way or another...The tissue expanders that I have inside of me right now, (that I loathe), are filled with saline, but the shell is made up of silicone.....


These are what tissue expanders look like..The port is the dark metal part, where the needle is inserted to "inflate"them with more saline to expand them, to get the muscle ready for the real implant.

I hear that silicone implants are "squishier" and feel more natural than the saline implants do...The saline implants have a reputation for "rippling"..Ya know...Like what you see with all of the anorexic, celebrities on the red carpet, who think their boobs look great, but then they bend over, and your like, "WTF! Did you see her weird ass looking boobs??!( But then again, who am I to talk, because I don't even have nipples on my tits, so I guess I don't have much room to talk...My boobs pretty much are like barbies...They don't move...They are nippleless. I should stop talking shit about celebrities with bad boob jobs because...Well, just because...)

Probably the most important thing for most women that are trying to make this decision of silicone vs. saline is the whole safety issue...Basically, if for some reason, the silicone implant ruptures, you really have no idea..Your boob or boobs won't deflate like they would if they were saline implants...With the saline implants, there would be an almost immediate difference in boob/foob size. They pretty much deflate...And you are left with a saggy, deflated boob... But if a silicone implant ruptures, you really can't tell because the silicone is basically like gel, and just kind of sits in your body and tissues, and can/and has, gotten into the bloodstream of some women, and has killed some before...(RARE!) So how do you monitor this shit?? GEEZ! (Now that I scared the bejeezus out of ya!)

Well, with the silicone implants, my doctor told me that it's best to get yearly breast MRI's to monitor and check for ruptures....I asked her if my insurance would pay for these yearly MRI's, if she deemed them necessary, and she said she didn't know...But then I read something that said breast ultrasounds could detect a leak in silicone implants just as well, and aren't as expensive, if insurance will not pay for the yearly breast MRI's..Now as far as the saline implants...It's not necessary to have breast MRIs with these to monitor for ruptures, because like I said, it's pretty obvious when one has ruptured or has begun to leak....There would just be a difference in size..

And just in case you were wondering, my doctor told my to ABSOLUTELY, UNDER NO CIRCUMSTANCE to NEVER,EVER, EVER get another mammogram.....(Well, considering I've already
had a handful of them in the past year, along with a breast MRI, I think I'm good....) She said doing so would probably rupture the implants....(And I guess that goes with either silicone or saline).

So what is a girl, that is ready to get these expanders out, to do? Decisions, decisions....Right now, in all honesty, I am thinking about going with the silicone, despite the obvious cons I have listed....The way I see it, my foobs are gonna be fake no matter what...So why just go with the super fake ones? Silicone!

Tuesday, August 31, 2010

Find a Cure...For Our Daughter's Sake!!!!!!!!!!!!!!!

One of the first things I thought about when I found out that I was BRCA2+ was whether or not my little girl carried this same dreaded gene as I do....My mom was BRCA2+, had breast cancer, and was told that her little girl, (ME), would probably carry the same gene as her. Now that I know that I am in fact BRCA2+, obviously, I now wonder if my little girl carries this awful gene. In fact, when I got the news back in November of last year that my genetic testing had come back and that I was positive for the BRCA2 gene, the first thing that came to my mind was my daughter, Brooke. Does this mean I have passed this on to her??? Does this mean that she is BRCA2??????

Lately, because of my recent surgery and everbody's fixation on my chest area, including myself, doctors, friends, family, strangers even!, Brooke has taken notice to all of this....She is at the raw, innocent age of 4, and is already asking me when she is going to get boobs..(Which these days, isn't too far away, considering 5th graders are starting their periods now, and some have bigger boobs than I ever did, or now do.)..The other night, she asked me if they will take her boobs off when she gets big, as if that is just what happens to all women when they get older, because she sees me, her mommy, going through this, and accepts that it is normal...

I have tried my hardest to keep my pain and other issues out of my kids' sights. I don't want them to worry about me, or to worry about why I have to have my boobs, or body parts, removed. I just want them to be kids....But when Brooke or Andrew sees me undress and they see my strange, nipple-less breasts, or accidentally lean across me and fall on my rock hard chest, and I grimace in pain, they notice....They realize that their mommy is not how she used to be...And for Brooke, being a little girl, she takes notice to every single detail, every single mole, hair, and ecspecially, the new nipple-less boobs on her mommy. She is very aware to the fact that I no longer have nipples and she doesn't quite understand this. She keeps asking me if they will grow back, or if hers will oneday disappear, like mine did...(Because to her, my nipples just vanished...Kids don't understand the concept of "surgery". You can try to explain it to them, but if they have never had surgery, then they don't really understand...And it's scary for them...)

She also is very conscious about how her clothes look....On her chest.....And I'm sure this is my fault...She sees and hears me look at myself in the mirror constantly, staring at my foobs, trying to somehow make them look normal. Struggling to feel normal again in my new body..I no longer look at my face or hair in the mirror...It's all about the foobs...Well...The other day, Brooke was wearing a button down shirt, and she was so worried that the buttons were going to come unbuttoned...She kept saying, " I don't want everyone see my nipples."  Hmmm.....Really made me think....I need to be a little bit more careful about what I say about myself and how I talk about myself, and how I look at myself when she is around.....I look at myself in the mirror, and all I see are boobs, but when I see Brooke, I have to remember that she is a mirror of me...I need to remember that.

So all of this brings me to this issue.....Some people have asked me, "Are you going to get Brooke tested for the gene?" Well, NO......First of all, I don't want to test her now, because there is nothing I can do if she tests positive...There's nothing I can do presently...She's 4! It's not like she can go have a double mastectomy, go on preventive chemo, or have frequent mammograms...Once again, she's four years old!  Second of all, knowing that your child tests positive for an awful gene and having to sit around on that information for a while until your child is able to make her own decisions as to what to do.....Uh...no thanks........I don't think I could handle that.

I always say that if my mom could have been able to do this genetic testing and could have had her breasts removed BEFORE ever getting cancer, that she would still be alive today...But the technology wasn't there during those years.......Look at where we're at today....Genetic testing told me that I have a genetic mutation, the same type as my mom had, that would allow tumors to grow, particularly in my breasts, and I was able to have my breasts removed BEFORE that ever happened. Now, I no longer have breasts, so tumors can't grow there= fuck breast cancer. So just think where technology will be in 20 more years....Maybe a vaccine for BRCA+ people......Maybe a cure? Maybe breast cancer will no longer be a threat to any woman, or man, in the world anymore...Maybe....

That's what I am hoping for. I don't want my child to have to go through anything like this...It's fine that I have to do it....I am finally at peace with that...But I don't want to have to see my little girl have to..So when you see the word "HOPE" associated with breast cancer awareness and stuff, a lot of times, that hope is for our future generations....For our daughters. The hope that a miracle will happen...

Thursday, August 26, 2010

The Woman in the Mirror

As I look at myself in the mirror lately, all I see are HUGE, nipple-less, rock hard foobs, with scars across them.....I have had 4 fills to my tissue expanders, for a total of 410cc's into each one, and to tell the truth, I think my body will only be able to take one more fill. I have been in so much pain since my last fill, which was 4 days ago. Right before my last fill, the pain was starting to subside....The percocet was too strong for the pain that I had every day, and I actually only took them like once or twice a week....So when I saw the doctor this past Monday (8/23/10), I asked her for something a little bit weaker, but for something that would still relieve the pain. (Ibuprofen didn't do crap for me..) So my doc prescribed me Darvocet....WELLLLL, little did I know that this fill was going to be extremely painful, and I should have just stuck with the strong shit, instead of asking for something a little weaker......Oh well..At least I'm stocking up on my pharmacy at home...(JK....I'm a nurse...I'm not a druggie....I don't supply others with MY drugs...Seriously!) It's just frustrating to be in pain, not be in pain, then be in pain again....The cycle is exhausting....Mentally draining, as well...

And that brings me to another point. I have read from other womens' blogs who have gone through this, and how they have struggled with depression during their recovery and stuff...Well, now I am writing about my own experience with this dreaded shit. The depression demon has reared its ugly head into my life the past couple of weeks, and it really sucks....I don't know what else to say except for that...It just really sucks ass.

First, you get the news of being BRCA+, go through the depression, denial, and eventually, acceptance of all of that shit.....Then you go through the process of planning your new life.....For me, it was surgery....Removal of my breasts.....So you go through the anxiety of waiting for that....Then it happens.....Then your life changes...Acutely, and permanently...It changes short term, because you are recovering from major surgery, aren't able to lift anything, do anything for a while, are in pain, are hurting, can't do things for your kids/family, can't work........It changes permanently because you are changing your natural body- you no longer have your breasts....And for me, even though I got immediate reconstruction, and have foobs (fake boobs, mounds, rocks, tissue expanders), it's not the same.....My new "breasts" (still in the process....I still have another surgery for the more permanent implants in about 3 months) really have no biological function....They have no feeling...No nipples.....They will never be able to produce milk, which I don't plan on ever doing again, but still......Your life also changes permanently, by having your breasts removed, because you no longer have to worry about cancer..I no longer have to worry about that 95% chance of getting breast cancer before I'm 50 years old...I no longer have to worry about the cysts...The lumps.....But during recovery, after the pain kind of goes away, and after the initial shock of having your body parts removed goes away, depression comes....Slowly but surely.....You're able to do things, but not able to do ALL the things that you were able to do prior to surgery...Such as: Running, lifting, work as much as you would like, etc.....And that right there can cause DEPRESSION.......(WAaaaaa!!...Somebody call the WAAAmbulance, right?? )

Depression is like one of those abusive, toxic "friends" that everyone has, or has had at one point in their lives...You know, the type of friend that makes you feel stupid, makes you second guess yourself about everything-about the way you act, the way you look, the way you talk, walk, dress, eat, EVERYTHING...The type of friend that mentally and emotionally breaks you down, makes you feel like shit, but there's nothing you can do to make that friend leave you the hell alone....Yea...That's depression......And I am no stranger to this so called "friend", or more appropriately called, ENEMY...I am no stranger to the most intense type of depression...After my mom passed away, depression ruled my life, literally  drove me to almost kill myself on numerous accounts, and I was hospitalized, medicated, treated, evaluated, etc....So depression is something that I know all too well....So I know when it's present in my life....And most of the time, I know how to deal with it......(Yes, I take antidepressants too on a daily basis.....Effexor XR 75mg)....Most of the time I can help others deal with it too.....But this time....Damn....This "friend" really likes me...

So lately, when I look in the mirror, I don't see Angela..All I see are those two fake, reconstructed breasts looking back at me....A depressed Angela is not who I am, and I know that with time, this will pass...But for now, I feel empty, just as my breasts are now empty.. ..:My emotions feel about as heavy as these tissue expanders are, that lie inside my chest muscles....And I'm as fragile as my skin is on my chest, from stretching to the max...But deep down, I still know that I'm going to get through all of this, because look what I've gotten through so far.....We don't gain strength without struggles....You don't cherish life until you've been faced with hearing a potential "death sentence", as a lot of us BRCA-ers call it....And I was able to do something about it...And I did...So for that, I'm thankful...Not depressed......So I'm trying to dig myself out of this dark hole....Trying as hard as I can, but when the pain sets in, I can't lift myself out of that hole with my own two arms...I don't have the strength yet....

Monday, August 16, 2010

MISS Angela

Picture taken on 8/15/10. I currently have 360cc's in my tissue expanders. I still have 3 fills to go..

"Do you miss your old boobs at all?"  This is a common question that I am faced with lately...Quite honestly, the answer is, "No."  But I will tell you what I miss...I miss my nipples...I really do. I don't know why. It's not like they served any purpose to me anymore...I have had my children, have breastfed them, (and am NOT having any more kids), and let's just be a little more honest here-my nipples really didn't serve any purpose in the bedroom.....But still...I miss my nipples...It's hard to look in the mirror, look at my gigantic foobs, and just see scars run across the lengths of them...Without nipples. It's like trying to look at your face without eyebrows or something. It's just wrong. It just looks weird...

I also miss being able to take a deep breath. And the ability to sneeze. Sneezing gives you an amazing feeling afterwards, but I can no longer experience this, due to the tissue expanders not allowing my chest to fully expand..Which is what happens when you sneeze.....It's awful. I pray that I am not in public when a sneeze comes on, because I start freaking out and yell/spaz out when the "sneeze" occurs. It's bad...And then I cry a little because of the severe pain it causes. Not cool at all. I actually scared the crap out of my kids the other day when I sneezed. They wouldn't come near me for about 3 hours afterwards. Yea..It's that bad.

I also miss the softness and jiggly-ness of boobs....The foobs I have right now don't do anything. I actually let my friends feel me up, just so that they can feel how H A R D they are. I always say that having these expanders in are like having big rocks sewn up inside my chest...Seriously. I can feel the edge of these "rocks" scrape up against my sternum all the time, and sometimes they get stuck between my ribs...UGH. Not cool, and it hurts...

I also miss not being able to sleep on my stomach....Awwwwwww.....I think I dream about being able to sleep on my stomach...I miss it that much. I am finally able to sleep on my side, but it's very awkward. I wake up feeling like the side I slept on is all crooked or something...

But with all of these things that I miss so much, I think about the things that I have gained. Number one, I no longer have to worry about breast cancer. The number one enemy in my world. Breast cancer is no longer a threat to me. Yes, I have to deal with some things that I don't like and obviously having to give up my god-given breasts, but I have peace of mind now. I wouldn't trade that for anything. I don't have to worry about my kids losing their mom to breast cancer when they are young. I don't have to worry about leaving my husband behind to raise our children alone because of breast cancer. I don't have to worry about WHEN anymore. Breast cancer is no longer a threat to me because I don't have breasts anymore.

So yea, I might miss my natural breasts at times...It's normal to grieve the things that we once had....But because I was so lucky to be able to have reconstruction done at the same time when my natural breasts were taken from me, these allow me to still feel like a woman-WOW! That's freaking amazing. Technology is amazing. I absolutely believe that had I not have had this surgery, I would be fighting breast cancer, probably in the next 10 years or so. (Partly because my mom was so young when she was diagnosed. She was 32. I am 26. My mom was BRCA2+, as well as I) I also believe that if my mom could have had her breasts removed before she had to fight with cancer, she would still be here today.  That's why I had my breasts removed.

So let me answer that question again..."Do you miss your old boobs?"  No....Not at all.

Monday, August 2, 2010

Back to Work

Tomorrow will be 3 weeks since I had my surgery...It doesn't seem that long, but when I think back- to the actual surgery, the trips home and back up to Albuquerque for my first fill, and the early stages of recovery, - three weeks is a long ass time....21 days to be exact! Haha. In fact, I felt that today was a good day to start back to work...Everybody thinks I'm insane for going back this early, but sitting around the house NOT getting paid just doesn't do much for me....And even though I got paid for the days off that I took for my surgery(because I am a "salary nurse"), I am the type of person that feels bad for getting a paycheck when I haven't worked, or earned it....I know, I know...WEIRDO FREAK! Haha...

So here I am....It is 7:30 p.m.....I worked from 8:30am to 5pm today, and of course I didn't see patients, but working in the office wore me out...Sitting at the desk, with my neck looking down, writing, stapling.....All that uses your pectoral muscles.You don't really realize that until you have something wrong with those muscles.....And as in "something wrong", I mean-having my muscles cut into to have a foreign object shoved into, much like a pocket....And now, I am HURTING...My muscles are cramped like crazy, and now my neck is trying to join in on the cramping party...But guess what?? I made it throught the whole day...I'm proud of myself....My goal is to hopefully start seeing patients next week...I go back on Monday to get my rocks, I mean expanders, filled for the 2nd time.....I might be in more pain after that than I am right now..It's so frustrating, because the pain/cramping is a day-to-day struggle and mystery....Will I  be in pain today? What about tomorrow?  It's impossible to know....I still have to take the Percocet on a daily basis...Sometimes in the morning, and that's it...Sometimes in the morning and at night.....It doesn't make me feel like I'm drugged up...It just takes the pain away..I am also on Flexeril...I take that twice a day for the cramping...I don't know about other women who have gone through this, but my foobs cramp almost CONSTANTLY. The only way I can describe it is like when you get a charlie horse in your foot, or the back of your leg...But these cramps don't go away....Sometimes they feel like a sharp knife/stabbing, that only lasts seconds.....Sometimes the cramps feel like braxton hicks contractions (if you've ever been preggo, then you know what I'm talking about), only in my foobs....All I know is that the cramps SUCK ASS, and at the end of the day, I am so exhausted from dealing with the cramping....The medication sorta/kinda helps....That's all I can say about it....

In fact, I'm so sore right now that typing is hurting.....So buh-bye..

Thursday, July 29, 2010

Fill Me Up!

Okay, so I know already blogged about my foobs getting filled and stuff, and I was planning on adding pictures that Bryan took during the whole process to that blog, but I couldn't get them downloaded to my computer at the time...BUT good news! Now they are downloaded, and so I decided to make another blog with the pictures.....

I always prefer to see pictures of things that I am going to have done/look like, and through this whole process, I always searched and searched for other women's blogs that had pictures of what their foobs looked like during recovery, what everything looks like....It gives you a better idea of what to expect....So this is why I am photo-documenting my journey...I want to make the journey for others, perhaps, a little easier, and to educate others...

So with all that said....Here we go.....








*These 2 pictures were taken right before my first fills. My scars are still healing and at the time, I was almost 2 weeks post surgery. (Skin sparing mastectomies with immediate reconstruction done with tissue expanders).  I also have drains in on each side too. Each expander had 260ccs of saline here at the time. 


*These two pictures aren't that great.....
The one on top just shows my two stupid drains that I hated with a vengence. The bottom one is just me waiting for the doctor. (In my painkiller/muscle relaxer premedicated daze....)



*So these next few pictures show the instruments of torture. Haha. Just kidding...The first photo shows the two HUGE ASS syringes with HUGE ass needles (that's what the dr. uses to stick in the foob's tissue expander to fill you up), iodine (to clean the site of insertion on your skin prior to stabbing), then two extra HUGE ASS needles (if needed), magnetic device (to find the magnet port on the tissue expander), and marker (to mark the point of the magnet on the skin to stab you with the HUGE ASS needle.)

 This picture to the left. is just an upclose picture of the magnetic thingamajig that my doctor used to find the magnet on my expander, over my skin.  She rubbed it over my foob, and when she was over the magnet on my expander, the little magnet things lined up on it, and she marked me with the marker. The pic to the right is the HUGE ASS needle.


Okay, So these pictures are pretty self explanatory...You can see where she marked, and cleaned with iodine, the areas to insert the needle...There is nothing much to say about this, except for that it feels very strange...The dr. just jams the needle in, the muscle cramps a little (that's about all the sensation I could feel because after a mastectomy, you no longer have sensation of feeling on your skin on your breasts....Anyways...She SLOWLY injected the saline, and I could immediately feel that I was filling up...She told me to tell her when it became "So tight that it's almost painful." Right at the end of the 50 cc's was when it began to feel like that for me...It doesn't hurt, but it's not a pleasant feeling. PREMEDICATE and it won't be as bad...Your muscles won't cramp and spasm as bad!!!


And Bandaids make it all okay! This is the result of having 50cc's added to each expander....So now, each expander is up to 310cc's...I can definitely tell a difference in size, tightness, and my profile is different..I suppose each fill gets a little more painful?? I don't know, but I have to go back up to Albuquerque every other Monday to have this same exact process done. This will continue until I feel like my foobs are big enough OR until I feel like my chest is going to explode...

Friday, July 23, 2010

I'm Alive!

I'm alive! The surgery went as planned and I now have "foobs"....(Fake Boobs=Foobs). It's been 10 days since I had my surgery and I am doing great..This blog is going to have pictures, pictures of a lot of fooobage, so I am warning you right now, make sure your kids aren't close by while you are reading this, or whatever, that way they don't get freaked out by the site of some of the scariest looking foobs you'll ever see.....Okay....  :)

My beautiful family at the Zoo the day before my surgery
So the day before my surgery, I just wanted to get out, be in the sun, and have fun with my kids. So we all went to the Albuquerque Zoo. I just wanted to TRY and not worry about my surgery.....

 Andrew, my 6 year old little boy, knew that we were in Albuquerque this time for my surgery, and we had been explaining to him, and to our 4 year old little girl, Brooke, about what was going to happen to me...In simple terms. I told all of my family members NOT to mention anything about "mommy's getting surgery so that she doesn't get cancer in the future," or anything along those lines, because my kids associate the word "cancer" with death....(Because they know that my mom died of breast cancer, and so now, when anybody dies, they always ask, "Did they have cancer?"  So we had just been explaining to them that I had to have surgery to take the yucky stuff out of my boobies (yes, we say "boobies" to our kids.)...and they will look different, but it's so that I can be healthy for a looooong time.....We also explained to them that after the surgery mommy would have to have a lot of help to carry stuff, to clean stuff and that I wouldn't be able to lift my arms a lot....They mostly just said, "Okay mom", and went on with their fun, which is what I want...I want them to be kids and don't want them to worry about surgery/pain/medical stuff.....                           

Anyways, that night after the zoo, my family came in from Lubbock, TX, and so my family and my husband's family all went out to eat.  Once again, I was TRYING not to think about my surgery.. Did it work? No....At dinner, the waitress asked, "So are we celebrating something tonight?" And there was an eerie silence..I almost said, "Yea, we are celebrating my boobs being cut off tomorrow." But I didn't, cuz that would have made the waitress feel very awkward, perhaps, and then she probably would've felt bad.....Hmm...I still should've said it, now that I think back....She would have had something to talk about with her friends...

My family the morning of my surgery
So the morning of my surgery arrives....My poor boobs and ESPECIALLY nipples had no idea what was coming to them in the near future.....I took a shower, and gave my boobs a real good look in the mirror when I got out....I would never see those breasts again.I will never again have nipples.. Never again in my life. Yea, they are just boobs, but when you come down to the day that you realize they are going to be taken away from you, it gets a little emotional...But then I had to remind myself why they must come off...And my sorrow went away...A little...

I gave my kids a big kiss and hug, told them I loved them soooo much, and told them I had to go to the hospital to have my surgery, and my little boy got a little teary-eyed....Which made me teary-eyed...Which made the 45 minute drive to the hospital emotional and scary, and I was a wreck by the time we got there....

Me in the OR holding area.
We got at the hospital, I checked in, realized they spelled my name wrong on my armband, and had my birthday wrong, (WTF!!!!!), so we made them fix it, and it created all kinds of chaos. I was already a fucking mess, and then we had to deal with all of that shit.....Geez...They should have given me a free dose of versed just because of all of their disorganization. EGH! Anyways....

I finally got in to the O.R. waiting/holding area, and changed into my lovely gown, Bryan took one last picture of my boobs with his camera phone....(Naughty, huh....BLAH)....And then my IV was started.....Then we waited for like an hour and a half.....During this time, multiple nurses came in, asked me the same damn questions, checked my vitals, and just talked...Most of them knew that I am an RN, so we just talked about nursing stuff, but I was still a mess....On the brink of a panic attack....

There was one time, when I was all alone in my little room, when Bryan left to go to the restroom, and I smelled a very strong smell of flowers.....The strange thing was that there were no flowers around, my door was closed....Here's the weird thing....Ever since my mom died, the smell of flowers have always reminded me of her...I don't know if it's because of her funeral, and all of the flowers we received, and I just associate the smell of flowers with her, or what, but either way, I smelled flowers....STRONGLY....I busted out crying. Bryan came back in the room and I told him what happened, and I told him that I knew that my mom was there with me. She was making it known that she was right there with me, even when I was alone. Even when I felt alone. Amazing .  :)

So finally, the "bartender" (aka anesthesiologist) came in, and asked me questions, and at this point, Bryan, my dad and his mom were in the room with me. The bartender gave me a dose of Versed, and about 15 seconds after that, I remember telling everyone goodbye and that I loved them....BLACKNESS.......

Five hours later, I wake up in the recovery room, sore, and the first thing I do is feel my chest.....(My doctor didn't wrap me up in a compression bra or ACE bandage or anyting)....But I felt  two bumps on my chest, as well as feeling like a car was sitting on top of me....Then I started shaking uncontrollably, which was just a side effect of coming out of the anesthesia..The nurse gave me some IV pain meds and something to make the shakes stop.....But I kept falling asleep and every time I would fall asleep, I would stop breathing, and I would have nurses yell, "ANGELA!! Wake up!! Take deep breaths!"  I just wanted to sleep and those damn nurses wouldn't let me. Haha..I had oxygen on, via nasal cannula, I had 2 drains, one coming out the side of each of my foobs, I had SCDS on that kept squeezing my legs, and I had a pain ball thing that leaked a local anesthesic into the muscle constantly on each side of my pectoral muscles...I was in pain, I was hot, and sweaty, and tired, and hungry....

My foobs covered with dressings, and the cord on my sternum is the "pain ball" tubing
Needless to say, I was in the recovery room for a little longer than usual because I kept doing this "not breathing" thing, and my pain was so severe, they wanted to get it under control before sending me up to my room for the night. I guess during surgery, the plastic surgeon inserted 260cc of saline into each of my expanders, which is way more than usual, and that was why I was having so much pain...She did this to minimize our visits up to Albuquerque every few weeks to get them filled... Finally, after an hour and a half, I was ready to go to my room...

Below are the pictures of the "pain ball" I keep talking about. The surgeon inserted two itty bitty tubes, one behind each muscle, through little insertions by my sternum, and it continuously leaked bupivacaine, which is a local anesthetic, to numb the pain internally...The ball got smaller every day, due to the medicine being leaked into the muscle, and by day 4, I just pulled the tubes out....(Which I couldn't feel, and were about a foot long each!)  Once it was out, I could really tell a difference with the pain. That little thing sure did help out a lot! I missed it when it was time to pull it out.
The insertion of the tubes from the pain ball
According to the surgeon, it is a relatively new thing,
"Pain ball" on day one
The "Pain ball" on its last day...See how it's all empty?

and because of the use of this thing, the hospitals stays after breast surgeries have been reduced to just one night....Which is how long I stayed in the hospital..One night...That's it. Everybody can't believe that, but honestly, there was no reason to keep me there longer, unless I couldn't tolerate the pain without IV pain meds....(And believe me, that first night totally sucked ass I needed and GOT those IV pain meds every 2 hours)....I didn't sleep, and had to have IV pain meds ever 2 hours...I cried, I was in pain, and I felt completely helpless. I couldn't use my arms to help myself get out of bed, I couldn't sleep, even though I was exhausted...It was miserable. I couldn't take a deep breath because of the immense pressure on my chest. It literally felt like a fat 900 lb. man was sitting on top of me....That night was awful..

But finally, the sun came up, and the doctor made her rounds, and I was discharged home....My pain has been minimal, mostly muscle spasms, which feels like a knife stabbing into my muscle every once in a while, and then I somtimes get cramps  in my muscles (mostly the left one), that seems to last for an hour or so. The pain meds and muscle relaxers are helping, but I even when I take them, the pain and spasms are still there...It comes with the territory...

My parents have had the kids for the past week, and I miss them sooooooo much, but I know that I needed this first week to relax and recover. If they were home, I would probably be trying to do too much, and probably hurt myself or something.....But they come home tomorrow! Yay!

My husband and I tried going to Wal-Mart the other day, and it turned out to be a disaster. He wanted me to sit in a wheelchair, and I refused, and about 15 minutes into shopping, I was in such severe pain, I was crying and Bryan had to walk me out to the car and go back in to pay for the stuff. I have to remind myself that I DID just have surgery.....

The drains are a pain in the ass. They hurt, and it sucks ass trying to find clothes to wear that cover them up..I think I will get them removed on Monday, because I am hardly draining anything anymore..But yes...All the stories you hear about the drains....They are all true. They suck!

My sleeping buddies..Colbie the dog and Sarge the cat
I have to sleep sitting up. I learned very quickly that laying flat makes the pressure intensify on my chest.....I started out sleeping on the couch with like 4 pillows around me, then I realized my butt was not appreciating that, so I figured we could just basically make a chair for me in our bed...And I've been doing that...But the mornings are awful...I wake up so stiff, and that is when my pain is at it's worst. Not even coffee can fix that!


But I am already able to lift my arms up to do my hair, I can wipe my own ass, (which I was scared of), I have absolutely no sensation on my foobs, and it feels very strange, but I guess I am going to have to get used to it. I am able to shower and have fixed up this little rope thing to tie around my neck like a necklace that holds my drains while I am showering,....It's hard for me to get into a car because I can't use my arms to assist me, so I have to rely a lot on my legs/core muscles now...

But you know what the best thing is!?? My doctor called the other day and said the pathology report came back and said that there were no signs of cancer in my breast tissue! So I guess this "fight" with breast cancer is done. I know I still have "that 5 % chance of getting breast cancer" but because I had this surgery, it took my risk down by 90%.......How freaking awesome is that. Cancer, you messed with the wrong biotch!

Saturday, April 10, 2010

Take a number!

My surgery is going to be approved my our insurance!!! WHOOHOO!!! We got the paper in the mail yesterday, and in a weird way, it felt like an acceptance letter into a college or something..So now, the reality of  my boobs coming off, is starting to really sink in....But I must remain positive....This is good....( I keep telling myself this, over and over again.) But I am human, and despite my cheerful, positive attitude about all of this, doubts and fear do occasionally creep up on me and scare the living shit out of me...But I keep telling myself, "This is good." 

I am one of those people who has to write things down in order to believe it...I have to see things in writing before I believe it, understand it, fully accept it......I'm a "reader-writer" I guess....Which is probably why I blog...I've blogged for years.....About my kids, about my marriage, about stupid, funny shit like "shark week" (aka menstruation), and stuff people loved to read about (for some reason)...But I have to write stuff down in order to believe it....(Or in this instance, type it.)

So I guess what I'm trying to say is that it's scary...It's normal to be scared...I'm scared. What normal human being wouldn't be scared to have their boobs removed?? (And yea, I know I am the one who is pushing for this surgery, but I am doing this do have a long, good life with my kids, my family, in hopes to decrease that 87% that I am going to get breast cancer before I'm 50.....Which, BTW is in only 24 years...BRCA positive people are also at higher risk for getting early onset cancer...(Remember my mom was only 32 when she found out she had cancer....) So once again, in my mind, there is no other option. 

 On Thursday, we are going up to Albuquerque to have a consultation with a plastic surgeon, who will be doing the reconstruction of the boobies during the same operation as the mastectomies....So once again, I will have to bare my chest for another stranger to poke and praud at, and pull and squeeze at......Oh the joys! I should feel flattered that so many people want to feel me up, squeeze my boobs, observe my chest.......(SARCASM NOTED!) At first, having to show my boobs to a doctor was kind of awkward......(But hey, I've had 2 kids, and I've shown A LOT more than just my boobs to the doctors!)  But now, I think I have had 7 different doctors examine my boobs, breast, knockers, funbags, titties, bossoms, etc., ALL within the past 6 months.......And I don't care anymore.....Take a number! Who's next!?